The National Implementation Group carried out a scoping exercise to identify all the support and advocacy groups offering support to parents bereaved through pregnancy loss and perinatal death.
They found 23 different groups providing support across the pregnancy loss spectrum.
The organisations identified provide varying levels of support and assistance to bereaved parents and families. The different groups identified provide varying levels of support and assistance to bereaved parents and families. The different groups are comprised of volunteers and/or professional staff.
The type of support offered varies greatly and may be loosely categorised as below:
● Parent – parent support
● Voluntary support organisations
● Non-Governmental organisations
● Professional support/ counselling services
● Educational organisations
● Advocacy groups
A Little Lifetime Foundation
Provides telephone, email and Facebook support for parents and families whose baby has died or is expected to die
● regular parent support meetings
● provide training for support team volunteers
● provide bereavement counselling by counsellor with special interest in bereavement
Support for parents and siblings following the death of a child
● on-line forums for parents, siblings and volunteers
● support group
● bereavement information events
● family remembrance events
Provides national bereavement counselling service specifically for children
● provides information and advice through its helpline and counselling for bereaved children
Bethany Bereavement Group
Support groups located in most counties and organised within parishes trained to listen to bereaved families with understanding
● provide information and support to those who have been affected by an ectopic pregnancy
● offer support rather than counselling
● advocate for the long term needs of couples following ectopic pregnancy
Every Life Counts
Offers a support network for parents who have received a diagnosis that their child may not live for very long after birth
Offer regular support meetings
● provide a befriending service and support helpline
● provide a safe and confidential setting, in which those bereaved through stillbirth or neonatal death can share their experiences
● provide hospitals with memory boxes for bereaved families
FirstLight offers professional supports to families following the unexpected loss of their child (up to 18 years):
● crisis intervention and home visit
● 1:1 and couple counselling
● play therapy/counselling for siblings
● closed therapeutic groups regionally
● remembrance events
Irish Childhood Bereavement Network
A hub for those working with bereaved children, young people and their families
● provides information about age appropriate literature for children
Irish Family Planning Association
Irish Hospice Foundation
Dedicated to all matters relating to dying, death and bereavement inIreland
Leanbh Mo Chroí
We are a non- judgmental support group, run by parents who have experienced complex diagnoses including severe and fatal fetal anomaly during pregnancy.
We support parents who choose to interrupt the pregnancy and those who chose to continue.
We offer support by phone, text, email and face to face. We hold regular support group meetings in Dublin and Cork, and sporadically in the rest of the country.
We hold creative workshops and have an active online community which welcomes new members.
Providing professional care and support –including counselling, accommodation and life skills –to women, their children, partners and families facing issues surrounding pregnancy, homelessness and parenthood
Miscarriage Association of Ireland
● telephone support, email support, Internet forum
● regional support groups
● support not counselling
Now I Lay Me Down To Sleep
Providing the gift of remembrance portraits to parents experiencing the death of a baby.
A counselling & training support delivering immediate, timely and affordable well-being professional counselling supports surrounding conception, pregnancy, childbirth and other related difficulties
One Day More
To support parents who receive a poor pre-natal prognosis for their baby
Our non-directive service provides practical information and support on all your options when faced with a crisis pregnancy
Supports children and young people affected by loss because of bereavement, separation or divorce
Offers support for families for babiesnewlyDiagnosedwith Trisomy 13/18
● support for families caring for babies andchildren with these disorders
● support for families experiencing bereavement
● information on Trisomy 13/18
Termination For Medical Reasons Ireland
We are an inclusive and non- judgmental campaign group comprised of parents who have lost babies to severe and fatal fetal anomalies.
We are inclusive of those who have had terminations of pregnancy, and those who continued their pregnancy.
We educate the public, the medical community and politicians on the multi-faceted experience of receiving a complex diagnosis in pregnancy and the impact of baby loss on our members.
We campaign for legislative and cultural change, in Ireland to better support the women and families affected.
Turas le Cheile
Provision of confidential, one to one, bereavement support
Vasa Praevia Ireland
Campaign group promoting the interests of parents who receive a diagnosis of Vasa Praevia