About

This website is specific to the Republic of Ireland and is aimed at supporting parents bereaved through pregnancy loss and perinatal death and at healthcare professionals who care for parents and families bereaved through pregnancy loss. It does this by signposting parents to support and professional services. It directs healthcare professionals to professional supports, clinical care pathways and education programmes.

Please note that this website is not an interactive forum and is not monitored.

Background

The Health Service Executive (HSE) National Incident Management Team (NIMT) 50278 (2013) recommended that providing bereavement care is an integral part of a maternity service. The Executive concluded that it should have a consistent approach to bereavement care in all the 19 Maternity Units in Ireland.

The National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death were developed following this year of consultation and discussion

The National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death were launched by Health Minister Simon Harris in August 2016.

Dr Keelin O’Donoghue, Consultant Obstetrician & Gynaecologist in CUMH was appointed as National Implementation Lead for the Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death. Rióna Cotter was appointed, for a two year period, as programme manager and the implementation programme commenced in March 2017

The implementation process was facilitated by a 14 member National Implementation Group (NIG) comprised of a multi- disciplinary team of healthcare professionals who have experience and expertise in the area of pregnancy loss and perinatal death.

As part of the implementation brief the NIG were committed to developing a national website which would be used as a resource specifically for parents bereaved through pregnancy loss and perinatal death and the healthcare professionals who care for them

Vision

This website was developed for the sharing and dissemination of the documents produced by the National Implementation Group (NIG). This website will assist health care professionals delivering bereavement care in accessing up to date, accurate information and advice.

The website does not provide a public forum to answer questions or facilitate open conversation.

The website is a repository for patient information with links to all of the support groups and parent advocacy groups working within the area of pregnancy loss.

It is also a repository for patient care documentation that staff can use e.g. patient information leaflets.

Contact details for the Bereavement Teams are available in each of the 19 Maternity hospitals to ensure that parents have access to the necessary support teams and services in each hospital.

This website will be managed by the Pregnancy Loss Research Group, UCC in partnership with the Irish Hospice Foundation. The website will be reviewed regularly by a Steering Group, with representatives from the management team and members of the development team.

Website Management Group

Dr Keelin O’Donoghue

Consultant Obstetrician & Gynaecologist, Former National Implementation Lead

Ms Rióna Cotter

Midwife, Former Programme Manager for Implementation

Rev Daniel Nuzum

Healthcare Chaplain

Anna Maria Verling

Bereavement Clinical Midwife Specialist

Dr Karen Mc Namara

Locum Consultant Obstetrician & Gynaecologist

Dr Anne Doolan

Consultant Neonatologist

Ms Christine O’Brien

Parent Representative

Ms Sioban O’Brien Green

Irish Hospice Foundation

Ms Caoimhe Byrne

EPE, Marketing & Communications Officer INFANT

Thank you to sponsors

The Irish Hospice Foundation has worked in partnership with the National Implementation Group in the development and design of the website. The website development and design has been generously funded by the Irish Hospice Foundation.

Supported by